Seeking Answers for Spreading Numbness and Tingling
I’m a 21-year-old female dealing with several health issues, including hypermobile Ehlers-Danlos syndrome, fibromyalgia, chronic depression, scoliosis with a 15-degree curvature in both my lumbar and thoracic regions, a condition commonly referred to as 'military neck', along with obesity and anxiety/ADHD. Currently, I'm on a few medications: Sertraline at 100mg, Nexplanon, Strattera at 8mg, vitamin D, and Wellbutrin at 300mg. Forgive any grammatical errors or lack of clarity in my message. For the past five years, I have been experiencing distressing numbness and tingling that originated in my thigh. It began just above the kneecap and has progressively extended all the way up to just beneath my groin on the front side, as well as starting to affect my calf. This has left me feeling incredibly anxious. During a recent evaluation, my primary care physician observed a notable difference between my thighs; the affected leg is notably harder and denser. Unfortunately, she could not determine the root cause. A physical therapist and a physician assistant from The Mayo Clinic in Florida were unable to provide answers either, and a consultation with a nerve specialist resulted in inconclusive EMG results. Similarly, chiropractors have also found no clarity in the situation. I have been advocating for an MRI of my spine, suspecting that this may be related to a nerve issue, especially since I also suffer from significant lower back pain. However, I feel like my concerns are not being taken seriously. I am certain that something is wrong, and the situation is deteriorating fast. I’m looking for advice on what steps I should take next or which specialists I should reach out to for help.
Answers (1)
3/20/2025, 9:40:38 PM
OpenHealth AI
It sounds like you're experiencing distressing symptoms of numbness and tingling that are worsening, and I understand how frustrating it can be when you’re not getting clear answers. Let's break down the situation and explore some actionable next steps to help you advocate for your health.
Key Points:
- Your symptoms could be related to nerve compression or other underlying issues, especially considering your existing health conditions.
- Persistence in communication with healthcare providers is crucial.
- Seeking the right specialists and diagnostic tests can be effective steps forward.
Explanation:
Numbness and tingling can stem from various causes, including nerve issues, structural problems in the spine, or even complications related to your existing conditions (like hypermobile Ehlers-Danlos syndrome). Given that you've already consulted multiple specialists without getting clear answers, it's understandable to feel anxious and concerned about your health.
The fact that your primary care physician noted a difference in density between your thighs may indicate a potential problem that shouldn't be overlooked. Differences in muscle tone, strength, or sensation can suggest nerve involvement or other neuromuscular issues.
Next Steps:
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Continue Pursuing MRI:
- Revisit your primary care physician and strongly advocate for an MRI of your spine. Emphasize the progression of your symptoms and previous evaluations that suggest a need for deeper investigation.
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Consider a Neurologist with Nerve Disorders Expertise:
- Seek out a neurologist who specializes in neuromuscular disorders. They may offer a fresh perspective and be equipped to explore your nerve function more thoroughly.
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Document Symptoms:
- Keep a detailed diary of your symptoms, noting when they occur, their severity, any triggers, and how they change. Having this information can be incredibly helpful for your healthcare providers.
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Explore Pain Management:
- Since you are dealing with chronic pain, consider discussing with your healthcare provider about integrative pain management options, which may include physical therapy specific for nerve issues or additional interventions to manage both your pain and anxiety.
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Mental Health Support:
- Continue your mental health therapies, especially during this stressful time. Consider reaching out to a therapist who understands chronic illness as they can provide valuable coping strategies.
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Support Groups:
- Look for support groups online or in your area for people living with chronic pain and other related conditions. Speaking with others who understand your situation can provide emotional support and practical advice.
Being proactive and persistent in seeking answers is vital. If you're feeling overlooked, remember that you have the right to seek second opinions and demand the tests you believe are necessary for a comprehensive understanding of your condition. You're not alone in this journey—many patients face similar challenges in getting the right diagnosis and support.
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