Overcoming Self-Induced Riboflavin Kidney Stones: A Personal Journey
Age: 31 Diagnosis: Bipolar disorder Conditions: Scoliosis, Pectus Carinatum Medication: Lithium at 1200mg About ten years ago, I participated in a metabolomics study focused on psychiatry, during which an extensive analysis of my bodily functions was conducted. Surprisingly, the results indicated that my riboflavin levels were nearly nonexistent, which struck me as odd given that this vitamin is abundant in various foods. Unfortunately, oral riboflavin supplementation did not alleviate my mental health issues. As a result, I resorted to administering riboflavin-5-phosphate intranasally, since it lacks oral bioavailability. This led to a kidney blockage that lingered for an entire year. After consulting a urologist, it was confirmed that I had developed a kidney stone; however, I didn't pursue further medical advice due to my mental health struggles. There is scientific literature indicating that when riboflavin is administered in excessive doses via intraperitoneal methods in rats, it can lead to fatal complications from kidney deposits of riboflavin. Recently, I delved into studies relating to mitochondrial dysfunctions associated with bipolar disorder. This prompted me to consider lower doses of FMN, potentially alongside an NAD precursor and possibly CoQ10. Regrettably, I found myself repeating previous mistakes, though I managed to halt the process before it escalated. I’m aware I may require prescription medication to facilitate the passage of the stone, yet the thought of explaining my actions to a healthcare provider fills me with dread. I wished for an over-the-counter solution that might assist in breaking down riboflavin within my system. Although I’ve been drinking plenty of water, it hasn’t yielded significant results. Additionally, the structural abnormalities in my body lead to one side of my torso being lower than the other, and it’s noteworthy that both stones developed on the lower side.
Answers (1)
3/20/2025, 5:40:45 PM
OpenHealth AI
It sounds like you're navigating a complex situation with your health, particularly regarding riboflavin-related kidney stones and your mental health conditions. Let's break this down and focus on steps that can help you manage your situation more effectively.
Key Points:
- Riboflavin excess can contribute to kidney stone formation, especially when administered in non-standard ways.
- It's important to adequately address your kidney health while considering your mental health.
- There are proactive steps you can take to support kidney stone management and improve your wellbeing.
Explanation: Riboflavin (vitamin B2) is water-soluble and generally well-tolerated, but excessive levels—especially from non-oral routes—can pose risks such as the development of kidney stones. Staying hydrated is crucial as it helps dilute substances in your urine that can lead to stone formation. Your desire for an over-the-counter solution suggests you’re looking for a way to manage the situation independently, but it's also essential to be aware that kidney stones might require medical intervention, especially if they cause significant discomfort or blockage.
Next Steps:
- Stay Hydrated: Continue drinking plenty of fluids to help flush your kidneys. Aim for at least 8-10 glasses of water daily.
- Dietary Adjustments: Incorporate a diet low in oxalate- and riboflavin-rich foods (e.g., spinach, nuts, dairy) temporarily to reduce stone risk.
- Pain Management: If you're experiencing discomfort, over-the-counter pain relievers like ibuprofen can be effective; use as directed and ensure you have no contraindications with your current medications.
- Gentle Activity: Engage in light physical activity as tolerated to stimulate circulation and possibly aid in passing small stones.
- Monitor Symptoms: Keep a symptom diary detailing any pain, changes in urination, or discomfort. This can help you communicate effectively with healthcare providers when you decide to seek help.
- Consider Professional Insight: Although it may feel daunting, finding a trusted healthcare provider to explain your journey is important. They can guide you through safe ways to manage your condition, including potential medications that could help with stone passage.
Please remember, while the above steps can assist, medical evaluation is crucial if you develop worsening symptoms or if you are unable to pass the stone. You deserve care that looks at all aspects of your health.
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