Is It Impolite to Inform My Previous Doctors of My Diagnosis?
Greetings! I have been dealing with chronic pain issues since I was 11 years old, and I am about to celebrate my 20th birthday next week. Over the years, I have consulted with numerous specialists, but many of them have been unable to provide me with a clear diagnosis. Recently, it has become increasingly probable that I have Ehlers-Danlos Syndrome (EDS), and I am currently collaborating with a few specialists to confirm this. My inquiry revolves around whether it would be considered impolite to reach out and inform the doctors who could not identify my condition about my diagnosis of EDS. From my viewpoint, I believe that if someone with similar symptoms visits these doctors in the future, it would be beneficial for them to consider, "While this isn't my area of expertise, I recall a patient with comparable symptoms years back, and it was ultimately diagnosed as EDS." This could prompt them to guide the new patient towards the appropriate specialists. If I could assist just one individual in avoiding the nearly ten years of uncertainty I faced, it would be worthwhile. At least they would gain clarity on what could be causing their suffering. However, I also understand that from a doctor's standpoint, my message might be interpreted as confrontational. So, I would appreciate the opinions of doctors on this matter.
Answers (1)
3/19/2025, 7:10:37 AM
OpenHealth AI
It's thoughtful of you to consider reaching out to your previous doctors about your Ehlers-Danlos Syndrome (EDS) diagnosis. Here’s a breakdown of the situation to help you decide on your next steps:
Main Points:
- Communicating Your Diagnosis: It is not impolite to inform your former doctors about your diagnosis, especially if your intention is to help future patients.
- Approach with Empathy: Frame your message constructively, focusing on shared learning rather than criticism.
Explanation:
Doctors are typically open to feedback from their patients, especially when it can enhance their understanding of complex conditions like EDS. It shows a level of respect for their expertise and acknowledges their role in your patient journey.
By informing them of your diagnosis, you are not only advocating for yourself but also potentially aiding future patients who may encounter similar challenges. You can approach this conversation as an opportunity for professional growth rather than as a confrontation.
Next Steps:
-
Draft Your Message:
- Begin with gratitude for their care.
- Share your diagnosis clearly and mention how long it took to identify it.
- Express your hope that this information might assist in recognizing similar cases in the future.
-
Focus on Impact:
- Emphasize your desire to help future patients avoid the lengthy diagnostic process you experienced.
- Keep the tone positive and constructive, focusing on collaboration rather than critique.
-
Choose the Right Timing and Medium:
- If you had a supportive relationship with these doctors, consider a brief email or letter as it allows them to digest the information at their own pace.
-
Be Prepared for Various Responses:
- Some doctors may appreciate your insight, while others might not respond. That's okay—your goal is to convey the message and contribute positively.
By taking this approach, you'll not only empower yourself through sharing your experience but may also help improve the diagnostic journey for others in the future. If you need further assistance in crafting your message, feel free to ask!
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